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Patient Organizations Expression of Hope is brought to you by Genzyme in collaboration with patient organizations and societies from around the world. The list of names is growing as more and more groups are getting involved in Expression of Hope. Genzyme is proud to be affiliated with these fine organizations and salutes the important work they do. If you are in a patient society supporting patients with an LSD and would like to get involved with Expression of Hope, please send us an email. Because many lysosomal storage disorders are so rare, patients may often feel alone in their diagnosis. There are many organizations and societies that help bring patients together with others who have shared their experiences. In addition, they can provide educational and practical information and advocate on behalf of patients. Genzyme does not endorse the organizations here and provides these links for informational purposes only. Acid Maltase Deficiency Association Asociación Colombiana de Pacientes con Enfermedades de Depósito Lisosomal, ACOPEL Associação Brasileira de Pacientes Portadores da Doença de Fabry e Familiares, ABRAFF Associação Brasileira dos Portadores da Doença de Gaucher Av. Nossa Senhora de Copacabana, 500 sala 1112 Associação Paulista dos Portadores da Doença de Gaucher, APPDG Australian MPS Society Australian Pompe Association Canadian Society for Mucopolysaccharide (MPS) and Related Diseases Fabry Society of Canada Fabry Suisse Fabry Support and Information Group Genetic Alliance Gesellschaft für Mukopolysaccharidosen Hide and Seek Foundation International Pompe Association Korean Organization of Rare Diseases (KORD) National Gaucher Foundation National Gaucher Foundation of Canada National MPS Society National Niemann-Pick Disease Foundation National Organization of Rare Disorders (NORD) Sophia’s Garden Foundation National Tay-Sachs and Allied Diseases Taiwan Foundation for Rare Disorders (TFRD) United Pompe Foundation Vereniging Spierziekten Nederland, VSN | |
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The Expressions of Hope Gallery is now open! Keep up to date on news via email. Sign up now.
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